Jasons battle of Ferriprox® v Superficial Siderosis
Tuesday, 6 May 2014
First fall outside
My left foot turned inside when I fell in a gap of a walkway. My vision was a very bouncy today so I am wondering why this is. Putting everything down to my visual disability is too easy. I have concluded that my physical health and mental health must work together and I have been allowing the mental get the best of me, I need to get physical. I am investing in a weights bench again taking it slow.
Wednesday, 2 April 2014
Hematoma
Every week I have a full blood count check. Today I went to the hospital to have my blood taken, and everything went as usual however, just a few moments ago I removed my plaster to see this haematoma from the injection which has not occurred before now. Is this a concern?
5/5/14
It appears that I am bruising easily because of the large needles. I had a smaller one and they are fine.
5/5/14
It appears that I am bruising easily because of the large needles. I had a smaller one and they are fine.
Wednesday, 26 February 2014
Oops, only half the dose!
I have been taking only half the dose of Feriprox from day one till now accidentally, however this seems to have worked out well as there would of been a period of time without any of the drug. The positives so far are;
Less shakes
Less bouncing in vision
Very few smooth muscle spasms
The negatives
Stiff joints
Tiredness
This shows that with only half the dose I am making massive improvements. I will now take Feriprox two times a day with two tablets. I am confident that the results will be excellent in very little time. Today even the headache was minimal and not localised like last time.
I need to ask for something for my stiff joints.
Less shakes
Less bouncing in vision
Very few smooth muscle spasms
The negatives
Stiff joints
Tiredness
This shows that with only half the dose I am making massive improvements. I will now take Feriprox two times a day with two tablets. I am confident that the results will be excellent in very little time. Today even the headache was minimal and not localised like last time.
I need to ask for something for my stiff joints.
Tuesday, 25 February 2014
Regular headache location
A regular pain behind the lower Occipital bone has been occurring throughout the day and as I recall has occurred on other days. The pain sets off as sharp and then almost immediately turns cloudy and heavy. Today I was up and about quite a bit and was not under any major amount of stress. My shakes have been 2/5 however my coordination has been very bad.
Monday, 24 February 2014
Faster reflexes
Today has been a big development in the taking Feriprox (5 weeks so far). For the first time in 33 years (I had a brain hemorrhage in "82), my arm and hand on my right side caught a bottle as it fell off the tabletop.
I'm well chuffed. My shakes have got less and I am more coordinated. I am very optimistic with the future.
Faster reflexes
Three days ago there was a big development in the taking Feriprox (5 weeks so far). For the first time in 33 years (I had a brain hemorrhage in "82), my arm and hand on my right side caught a bottle as it fell off the tabletop.
I'm well chuffed. My shakes have got less and I am more coordinated. I am very optimistic with the future.
Aching joints
At first I put it down to exercise as in being out and busy however recently I have felt it in my hands and neck. Should I take some medication of the counter shelf to help with aching joints?
When I stopped weight training (which was about the time of my first hernia operation), I had a bad shoulder. The shoulder pain seemed to be a minor deltoid tear however, I believe I believe I could have a nerve trapped upon rotation of the shoulder. I have arranged a scan with my doctor and am taking 1600 ml of ibuprofens per day to reduce the swelling, hopefully this will also help out with calming on my nerves.
When I stopped weight training (which was about the time of my first hernia operation), I had a bad shoulder. The shoulder pain seemed to be a minor deltoid tear however, I believe I believe I could have a nerve trapped upon rotation of the shoulder. I have arranged a scan with my doctor and am taking 1600 ml of ibuprofens per day to reduce the swelling, hopefully this will also help out with calming on my nerves.
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